Albinos In Anambra State Demand Assistance Amid Skin Cancer Surge

Albinos In Anambra State Demand Assistance Amid Skin Cancer Surge

Members of the Anambra State Albinism Association have raised urgent concerns about the prevalence of skin cancer within their community, noting that the disease has claimed the lives of several members and currently afflicts four others. In response, they are appealing to the state government, relevant agencies, and organizations for support and medical assistance for albinos suffering from skin cancer.

During the 2024 International Albinism Awareness Day and the launch of a medical trust fund in Awka, the state capital, ASAA Chairman Ben Orizu expressed sorrow over the loss of four members to skin cancer, attributing it to exposure to harsh weather conditions and inadequate medical care. He highlighted the challenges faced by individuals with albinism, including visual impairment, heightened susceptibility to skin cancer, and societal isolation due to lack of sun protection.

“We stand united to reshape the narrative and foster a more inclusive and supportive environment,” Orizu stated. “The absence of specialized care and support has resulted in profound losses, including the tragic deaths of four individuals to skin cancer in recent years.”

He announced the establishment of the Anambra State Albinism Medical Trust Fund, aimed at providing essential healthcare, assistive devices, and resources to enhance the quality of life for albinos across the state. Orizu also mentioned late members such as Mr. Enemuo Ifeanyi (27 years old, 2021), Mr. Peter Raymond (25 years old, 2022), Ms. Ekemezie Precious (24 years old, 2023), and Ms. Abuone Ijeoma (46 years old, 2024).

The ASAA Chairman made a heartfelt plea for financial support for Mr. Joseph Okoye, who urgently requires N1.5 million for chemotherapy as his skin cancer has reached an advanced stage.

Contributing to the discourse, Ugochukwu Okeke, Anambra State Chairman of the Joint National Association of Persons with Disabilities, urged the state government to formulate policies addressing the unique needs of people with albinism. These policies could include provisions like priority seating in classrooms for improved vision and recommendations for protective clothing such as long sleeves and hats.

Dr. Chetana Anaje, a consultant dermatologist, advised ASAA to prioritize regular medical check-ups for early detection and treatment of cancer and other health issues. She recommended preventive measures for individuals with albinism, such as avoiding sun exposure between 10 am and 6 pm, applying sunscreen, wearing protective clothing, using umbrellas, and sunglasses.

In a supportive gesture, Prof. Emeka Obiozor from the Centre for Disability and Special Needs Research at Nnamdi Azikiwe University, Awka, encouraged albinos to maintain self-care routines and incorporate physical exercise into their daily lives. He assured assistance with educational and skills acquisition opportunities for interested members.

Dr. Nelson Omenugha, Special Adviser to Governor Soludo on Youth Empowerment, affirmed ongoing government commitment to supporting the albino community through various programs and policies.

Prof. Dennis Aribodor, a Public Health professor from UNIZIK, pledged his support to ASAA’s objectives, while Dr. Simeon Onyemaechi, Managing Director of the Anambra State Health Insurance Agency, facilitated free insurance enrollment for 70 ASAA members, represented by Dr. Ifediora Ngozika.